NBDF showcases a wide array of findings from the latest in bleeding disorders research at our annual Bleeding Disorders Conference.
Von Willebrand Disease: An international Survey to Inform Priorities for New Guidelines
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Use of Return to Sport Testing for Prevention of Bleeding Episodes Following an Acute Injury in the Hemophilia Patient
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Orthopedic and Physical Therapy
von Willebrand Factor in Pregnancy (VIP) Study: A Multicenter Study of Wilate Use in von Willebrand Disease for Childbirth
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Women's Research
Depression in hemophilia and von Willebrand using the Beck Depression Inventory
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Optimizing signal strength and suppressive potential of FVIII specific CAR Tregs for tolerance induction in a murine model of hemophilia A
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Gender Differences in Parenting Stress and Social Support Among Hemophilia Families
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
No evidence of germline transmission of vector DNA following intravenous administration of AAV5-hFIX to male mice
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
The impact of face-to-face social work meetings in bleeding disorder care
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Clinical Study to Investigate the Efficacy and Safety of Wilate During Prophylaxis in Previously Treated Patients With Von Willebrand Disease (VWD)
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
The Effect of Bleeding Disorder Characteristics on Patient Perceived Challenges and Management Strategies
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Peer Support/Outreach/Integration Models
Surgical Experience in Two Multicenter, Open-label Phase 3 Studies of Emicizumab in Persons with Hemophilia A with Inhibitors (HAVEN 1 and HAVEN 2)
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Use of platelet microcapsule hybrids loaded with factor VIII to treat hemophilia A mice
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Giving men with vwd a voice
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Peer Support/Outreach/Integration Models
Discrepant Hemophilia A: Single Institution Experience
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Identification of Challenges and Coping Strategies in the Management of Bleeding Disorders, From the Patient Perspective
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Patient Satisfaction with US Hemophilia Treatment Centers: National Trends 2017
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
HOPE-B: Study design of a Phase III trial of an investigational gene therapy AMT-061 in subjects with severe or moderately severe hemophilia B
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
rFVIIIFc for immune tolerance induction in severe hemophilia A subjects with inhibitors: a follow-up retrospective analysis
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Inhibitors
NHF’s State Based Advocacy Coalitions (SBAC) Program
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Law/Ethics/Health Policy
Effective Protection for >5 Years With BAY 94-9027 Prophylaxis: PROTECT VIII Extension Trial Interim Results
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials