Input from Across the Community
Through an extensive listening program, plus input from patients, caregivers, family members, chapters, healthcare providers and industry professionals, this research blueprint includes voices of the entire community.
Lived experience experts (LEEs) leading the way
People affected by bleeding disorders, known as lived experience experts (LEEs), are critical to every step of the research process and are central to the development of the NRB.
Research Priorities
Expert working groups, including individuals affected by bleeding disorders, healthcare professionals, researchers and other community members have defined knowledge gaps and actionable research questions and goals to address them.
Progress Toward the Community NRB
This Progress Update explains what we've learned from the community throughout this process and the work that continues to turn the Blueprint into action.