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Home
  • Who We Are
    • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Future Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Steps for Living
      • Inhibitor Education
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Register to Vote
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • National Research Blueprint
      • What is the National Research Blueprint?
      • The NRB Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our NRB Journey Together
      • NRB Resources
  • Healthcare Professionals
    • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Contact Us
  • Subscribe
  • News
  • Events
  • Give
    • Give Now
      • Make a Donation
      • Give Monthly
      • Honor a Loved One
      • Support Research
      • Why Give?
      • Kevin Child Scholarship Donation Form
      • Physician Partners
    • Other Ways to Give
      • Be a Corporate Partner
      • Donate Your Car
      • Give Stock
      • Donor Advised Funds
      • Giving Tuesday
      • Planned Giving
    • Fundraise
      • Run in a Marathon
      • Create Your Own Fundraiser
      • Fundraise on Facebook
    • Join Us
      • Bleeding Disorders Awareness Month
      • Find a Walk
NBDF’s Established Initiatives & Impact >

News

Stay informed with the latest updates for the inheritable blood disorders community.

          Stay informed with the latest updates for the inheritable blood disorders community.

          Advocacy & Legislative
          Call to Action on Senate Tax Plan
          Call to Action on Senate Tax Plan
          Nov 16, 2017
          Medical
          THSNA Summit Coming in March 2018
          THSNA Summit Coming in March 2018
          Nov 15, 2017
          Medical
          Psychosocial Needs of Aging Patients with Hemophilia the Focus of Partners Module
          Psychosocial Needs of Aging Patients with Hemophilia the Focus of…
          Nov 13, 2017
          Industry
          Alnylam Announces Successful Meeting with FDA on Fitusiran
          Alnylam Announces Successful Meeting with FDA on Fitusiran
          Nov 13, 2017
          Medical
          NHF Awards Three Judith Graham Pool Postdoctoral Research Fellowships
          NHF Awards Three Judith Graham Pool Postdoctoral Research Fellowships
          Nov 9, 2017
          Medical
          NHF-McMasters Guidelines on ECRI
          New Educational Webinars for Healthcare Providers Outside Hematology
          Nov 9, 2017
          Industry
          Study Shows Positive Joint Outcomes in Hemophilia A Patients Treating Prophylactically with ELOCTATE®
          Study Shows Positive Joint Outcomes in…
          Nov 6, 2017
          Industry
          ICER Review of Emicizumab for People with Hemophilia A and Inhibitors
          FDA Accepts Application for Bayer’s Investigational Hemophilia A Therapy
          Nov 6, 2017
          Industry
          FDA Grants Breakthrough Therapy Designation for BioMarin’s Investigative Hemophilia A Gene Therapy
          FDA Grants Breakthrough Therapy Designation for…
          Oct 30, 2017
          Medical
          New Medscape Activity Describes Latest Advances in Inhibitor Management
          Partners Clinical Management Module Focuses on ITI and Inhibitors
          Oct 27, 2017
          Industry
          Shire’s Hemophilia Gene Therapy Granted Orphan Drug Status by FDA
          Shire’s Hemophilia Gene Therapy Granted Orphan Drug Status by FDA
          Oct 27, 2017
          Advocacy & Legislative
          Joint Endorsement of Alexander-Murray
          Joint Endorsement of Alexander-Murray
          Oct 26, 2017
          Industry
          uniQure Announces First Hemophilia B Patient Treated in Phase III Gene Therapy Trial
          UniQure’s Investigational Hemophilia B Gene Therapy to Move Forward in…
          Oct 20, 2017
          Medical
          New Study Demonstrates Potential for Reducing Factor VIII Inhibitors in Hemophilia A
          New Study Demonstrates Potential for Reducing Factor VIII…
          Oct 17, 2017
          Advocacy & Legislative
          NHF Healthcare Update: Trump Executive Order and Cost-Sharing Reductions Changes
          NHF Healthcare Update: Trump Executive Order and Cost-Sharing…
          Oct 17, 2017

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