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Home
  • Who We Are
    • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Future Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Steps for Living
      • Inhibitor Education
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Register to Vote
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • National Research Blueprint
      • What is the National Research Blueprint?
      • The NRB Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our NRB Journey Together
      • NRB Resources
  • Healthcare Professionals
    • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Contact Us
  • Subscribe
  • News
  • Events
  • Give
    • Give Now
      • Make a Donation
      • Give Monthly
      • Honor a Loved One
      • Support Research
      • Why Give?
      • Kevin Child Scholarship Donation Form
      • Physician Partners
    • Other Ways to Give
      • Be a Corporate Partner
      • Donate Your Car
      • Give Stock
      • Donor Advised Funds
      • Giving Tuesday
      • Planned Giving
    • Fundraise
      • Run in a Marathon
      • Create Your Own Fundraiser
      • Fundraise on Facebook
    • Join Us
      • Bleeding Disorders Awareness Month
      • Find a Walk
NBDF’s Established Initiatives & Impact >

News

Stay informed with the latest updates for the inheritable blood disorders community.

          Stay informed with the latest updates for the inheritable blood disorders community.

          Medical
          New Medscape Activity Reviews Current and Emerging Treatments for Hemophilia A
          New Medscape Activity Reviews Current and Emerging Treatments for…
          Jan 2, 2018
          Industry
          Sangamo Announces First Patient Treated in Hemophilia B Gene Therapy Trial
          BioMarin Reports Positive Gene Therapy Trial Data at ASH
          Dec 19, 2017
          Industry
          Pfizer Initiates First Stage of Phase 3 Hemophilia B Gene Therapy Trial
          Alnylam Announces FDA Lift of Hold on Fitusiran Trials
          Dec 18, 2017
          Industry
          Shire and Rani Agree to Collaborate on Development of Orally-Administered Hemophilia A Therapy
          Shire and Rani Agree to Collaborate on Development of…
          Dec 14, 2017
          Industry
          Spark Reports Positive Clinical Trial Data on Hemophilia A and B Gene Therapies at ASH
          Spark Reports Positive Clinical Trial Data on Hemophilia A and…
          Dec 13, 2017
          NHF Supports Senate Bill to Stop Spread of Short-Term Plans
          NHF Healthcare Update: Congressional To-Do List
          Dec 11, 2017
          Industry
          Genentech Announces Positive HEMLIBRA Trial Results
          HEMLIBRA® Shows Prophylactic Efficacy in Hemophilia A Patients…
          Dec 5, 2017
          NBDF & Community
          NHF Announces the 2017 NHF/Novo Nordisk Career Development Award Recipient
          NHF Announces the 2017 NHF/Novo Nordisk Career Development Award Recipient…
          Dec 4, 2017
          Advocacy & Legislative
          It's Not Too Late: Take Action on Tax Reform
          It's Not Too Late: Take Action on Tax Reform
          Dec 4, 2017
          Medical
          Partners Module Addresses Psychosocial Considerations in Children with Hemophilia
          Partners Module Addresses Psychosocial Considerations in Children…
          Nov 29, 2017
          NBDF & Community
          "Action to Hope" Study Open to Hemophilia Community
          "Action to Hope" Study Open to Hemophilia Community
          Nov 29, 2017
          NBDF & Community
          Clinician Monographs Available through NHF Resource Center
          Clinician Monographs Available through NHF Resource Center
          Nov 28, 2017
          Industry
          FDA Grants Orphan Drug Designation for Rofecoxib, Pain Medication for Hemophilia Arthropathy
          FDA Grants Orphan Drug Designation for Rofecoxib, Pain…
          Nov 21, 2017
          Industry
          First Patient Enrolled in ITI Trial Using Eloctate
          First Patient Enrolled in ITI Trial Using Eloctate
          Nov 21, 2017
          Medical
          FDA Approves Once-Weekly Subcutaneous Therapy for Hemophilia A Patients with Inhibitors
          FDA Approves Once-Weekly Subcutaneous Therapy for Hemophilia…
          Nov 16, 2017

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