NBDF’s  Medical and Scientific Advisory Council (MASAC) issues recommendations and advisories on treatment, research, and other general health concerns for the bleeding disorders community. MASAC is composed of medical professionals, government agencies, and patients with a wide range of expertise on bleeding disorders, blood safety, and infectious diseases. MASAC guidelines cover a wide range of medical issues, from prevention and treatment to infectious disease complications and women with bleeding disorders. While these documents provide a wealth of information for medical providers, the content is also important for consumers.

MASAC For You (MFY) publications aims to distill the important medical information found in the MASAC Guidelines, into concise, accessible language directed toward a consumer audience in both English and Spanish languages. MFY publications are designed to be shared with medical providers, schools, caregivers, and family members. These “go-to” documents empower the community by having quick access to reliable, expert information to facilitate shared decision-making with healthcare providers.

Each of the MFY publications provides links to the original MASAC guidelines which can be used as companion documents for providers who may need and want more detailed information.

MASAC for You - WGPPM Getting a Diagnosis
Some WGPPM struggle to get a diagnosis of a bleeding disorder. This MASAC for You recommendation provides facts about bleeding disorders, signs of a bleeding disorder for WGPPM, and the importance of access to care.
MASAC for You - WGPPM Getting a Diagnosis
MASAC for You WGPPM Testing and Treatment
This MASAC for You recommendation will provide you with information on screening, testing, and other recommendations on the pathway to diagnosis. In addition, various treatment options are covered, along with what should be included in a treatment plan.
MASAC for You WGPPM Testing and Treatment
MASAC for You WGPPM Before and During Pregnancy
This MASAC for You recommendation provides information on things that may be different leading up to and during pregnancy for WGPPM with a bleeding disorder. Common testing and procedures are also discussed along with special considerations for those with a bleeding disorder.
MASAC for You WGPPM Before and During Pregnancy
MASAC for You Delivery and Postpartum Care
You can have a normal, happy, and healthy pregnancy with a bleeding disorder. This MASAC for You recommendation provides information on labor and delivery for both you and your baby, and the special care needed following delivery.
MASAC for You Delivery and Postpartum Care
Consumer Publication,All Patients & Families
Guidelines for Emergency Department Management of Hemophilia and Other Bleeding Disorders
A trip to the Emergency Department (ED) can be scary and stressful. MASAC For You – Guidelines for Emergency Department Management of Hemophilia and Other Bleeding Disorders, provides steps to help you prepare for an emergency department visit and includes important information to help navigate productive conversations with emergency department staff. The document provides high level treatment guidelines that patients can share with providers and includes links to other MASAC guidelines that deliver more detailed information on specific bleeding disorders and their patient populations.
MASAC For You Guidelines for Emergency Department Management
Consumer Publication,Spanish Speaking Individuals
Directrices Para Tratamiento De La Hemofilia Y Otros Trastornos Hemorrágicos En Los Servicios De Urgencias
Una visita al departamento de emergencias puede ser aterradora y estresante. Conocido por las siglas en Ingles: MASAC For You (Directrices de MASAC para el tratamiento de la hemofilia y otros trastornos hemorrágicos en el departamento de emergencias) ofrece pasos para ayudarle a prepararse para una visita al departamento de emergencias y incluye información importante para ayudarle a mantener conversaciones productivas con el personal del departamento de emergencias. El documento proporciona directrices de tratamiento de alto nivel que los pacientes pueden compartir con los proveedores y incluye enlaces a otras directrices de MASAC que ofrecen información más detallada sobre trastornos hemorrágicos específicos y sus poblaciones de pacientes.
Directrices Para Tratamiento De La Hemofilia Y Otros Trastornos Hemorrágicos En Los Servicios De Urgencias

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