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| Board Members |
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Effective March 11, 2012
| Ken Trader - Chair of the Board (Frisco, TX) |
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Ken is a senior level sales, marketing and managed care executive with leadership skills in Fortune 100 and 500 Corporations. He has a strong ability to drive organizational change and growth in challenging markets. Ken has demonstrated expertise in all aspects of business management. Ken has 18 years’ experience in working with the bleeding disorders community, supported by strong skills in advocacy, public relations, education and resource development. In addition, his industry experience in developing collaborative relationships with payers as well as his experience on the manufacturing and service sides of the hemophilia business will allow him to complement the diversity of skill sets on the board. Ken’s experience in working with federal and regional policy makers will provide value to the board in developing strategies and resources for future challenges. |
| Jorge de la Riva - Vice Chair of the Board (Houston, TX) |
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Jorge de la Riva is President of Rho Industries LLP (Hispanic 500 company), Chairman of Web Plastics Co. of Houston, Texas, and has worked in international trade for more than 25 years. As a partner in a successful small business, he has expertise in profit and loss statements (P& L), executive management, negotiations, and sales and marketing.
Jorge served as a volunteer at the Lone Star Chapter of NHF for more than 10 years where he worked in fund-raising and helped establish the Hemophilia Legal Hotline. He is the father of two children, one of whom has severe hemophilia. |
| Steve Helm - Secretary (Scottsdale, AZ) |
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Steven retired as Executive Vice President, General Counsel and Secretary to the Board of Directors for Allied Waste Industries in 2006. Prior to that he served as an attorney in private practice in Illinois for 20 years. He has extensive litigation and arbitration experience. Steven is currently the President of the Board of Directors of the Arizona Hemophilia Association in Phoenix.
Steven holds BA and JD degrees from the University of Illinois. He is a former member of the Illinois State Bar Association. He lives in Scottsdale, AZ, and Rockville, IN. |
| Keith Moore - Treasurer (West Chester, PA) |
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Keith is Vice President, International Business Development for Lockheed Martin Information Systems & Global Solutions. He has held various positions in the company since 1985. Prior to joining Lockheed Martin, he worked for six years at Boeing Company in advanced airframe design engineering and analysis.
Keith has a bachelor’s degree in mechanical engineering from the Pennsylvania State University. He serves on the boards of several organizations. He and his wife, Dr. Suzanne Moore, live in West Chester, PA. |
| Brian Andrew (Milwaukee, WI) |
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Brian Andrew is the Chief Investment Officer for Cleary Gull Advisors Inc., a wealth management and institutional advisory firm based in Milwaukee, WI. Brian has 25 years of investment management and finance experience, including for the non-profit health care industry as well as other mission driven organizations.
Brian has worked as an analyst, portfolio manager, Chief Investment Officer, COO and President of several money management businesses. He has been active in client and board education using industry forums within the investment management and health care industry.
He currently serves on the Advisory Board for the University of Wisconsin – Milwaukee College of Health Sciences. He has served on the Advisory Board for the Applied Investment Management Program at Marquette University where he has also guest lectured. Brian has also been active in varying capacities on the boards of several municipal and not-for-profit organizations including serving as President and Treasurer of the Great Lakes Hemophilia Foundation. He enjoys mentoring undergraduate students in the CFA Global Investment Research challenge as a coach and grader. He has also taught undergraduate finance courses at Concordia University at University of Wisconsin-Milwaukee.
Brian received his Chartered Financial Analyst designation and is a member of the Milwaukee and Chicago Investment Analyst Societies. He received his B.S. in business and finance from the University of Minnesota and completed the Harvard Business School/CFA Institute Investment Management Program. |
| Jordan Black (Cleveland, OH) |
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Jordan works for Global Prairie, a marketing communications company, where she specializes in healthcare marketing with a focus on integrated approaches to communications and programming that address both patient treatment and lifestyle needs.
Jordan received her Bachelor of Science degree in mass communications from Louisiana State University. As a part of her commitment to community, Jordan serves on the Executive Board of Directors for the Northern Ohio Hemophilia Foundation and the Executive Leadership Team of the Young Professionals of the American Cancer Society. |
| Barbara J. Gordon (Cranston, RI) |
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Barbara is a social worker and an educator, working with individuals, groups, and organizations. She was Vice President of the New England Hemophilia Association (NEHA) for more than 5 years. She has experience assessing a broad range of situations, identifying strengths and areas of concern, and planning responses based on mutual goals. Barbara effectively co-led NEHA through a complex transition period, served as NEHA leadership liaison to NHF, and initiated NEHA’s advocacy program. She has crafted legislative agendas and is an effective advocate at the state and federal levels. She has twin teenaged sons, one of whom has severe hemophilia. |
| James Heer (Minnetonka, MN) |
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James is a Vice President and Chief Actuary at the Workers’ Compensation Reinsurance Association, a non-profit association in Minnesota. He has worked in various roles as an actuary for nearly 20 years and has experience in risk management, insurance, accounting, finance, and investments.
James is active in the community, supporting his local schools, various nonprofits, and the MN Chamber of Commerce. He has experience in many aspects of fundraising for charities, including planning events, securing sponsorships, soliciting donations, and running events. While James and his family are not directly impacted by hemophilia, he has attended several events with a friend who has close ties to hemophilia. James is married with three young children. |
| Kristie Ostash, MD (Sammamish, WA) |
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Dr. Ostash received her medical degree from the University of Arizona. She completed her pediatric training and fellowship in Pediatric Behavior & Development/Child Maltreatment at Children’s Hospital Los Angeles. After her training, she accepted a position as Visiting Assistant Professor of Clinical Pediatrics at the USC Keck School of Medicine and was on staff as an Attending Physician within the Division of General Pediatrics and Attending Physician. In addition, Dr. Ostash served on the Child Abuse Identification Team and ethics committee at Children’s Hospital Los Angeles. While working, Dr. Ostash completed the Teaching/Learning Fellowship and the Educational Leadership Fellowship within the Division of Medical Education at the USC Keck School of Medicine. Her professional areas of interest include child maltreatment/abuse prevention and advocacy, spina bifida, behavior and developmental pediatrics and treating children with complex medical conditions.
Dr. Ostash now lives in Sammamish, Washington. She is active in her community; volunteering and participating in local civic and philanthropic activities through church, MOPS, PTSA and the Bleeding Disorder Foundation of Washington. She enjoys spending time with her husband and raising their three young children. |
| Matt Rhodes (San Francisco, CA) |
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Matt Rhodes is Director, Investor Relations, for Intuit Inc. Prior to joining Intuit in March 2010, Matt spent four years in Investor Relations at Yahoo! Inc. He previously worked in equity research for Banc of America Securities. He began his career with several marketing roles at Anheuser-Busch, Inc.
Matt earned an MBA from The Haas School of Business at the University of California, Berkeley, and a BS in communications from Northwestern University. He holds the Chartered Financial Analyst (CFA) designation and is Vice President-Treasurer of the Silicon Valley chapter of the National Investor Relations Institute (NIRI). |
| Dutta Satadip (San Jose, CA) |
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Dutta Satadip heads Product Strategy and Operations for Advertiser Products at Google. Dutta has held several leadership positions in engineering, marketing, product management and sales support.
He has been President of the Hemophilia Foundation of Northern California and has been serving the community since 2006. Dutta holds a graduate degree in computer science from Virginia Tech and an MBA from the University of California, Berkeley. |
| Carol Simonetti (Indianapolis, IN) |
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Carol G. Simonetti retired in 2009 after serving three years as the President/CEO of the Alaska Community Foundation, a statewide association of foundations. Other foundation experience includes President and CEO of the Indiana Grantmakers Alliance, Director of Community Foundation Services at the Council on Foundations in Washington, DC, Executive Director of the Community Foundation of Greater Lorain County (Ohio) and Program Officer at the Cleveland Foundation.
Carol did her undergraduate work at the Ohio State University in psychology. She has a master’s degree in social work from Case Western Reserve University and law degree from Cleveland Marshall College of Law. She is licensed to practice law in Ohio. |
| Dave Sternberg (Indianapolis, IN) |
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Dave is the author of the second edition of Fearless Fundraising for Nonprofit Boards, which is among the best sellers offered by BoardSource. He is a member of the faculty at The Center on Philanthropy at Indiana University’s Fund Raising School and a Senior Governance Consultant for BoardSource. He is the only person in America to hold a position with both organizations.
In 1996, Dave founded Loring, Sternberg and Associates providing fundraising counsel to educational foundations, social service organizations, higher education, membership organizations, children’s groups and museums. He is a frequent trainer and speaker both nationally and internationally.
Dave is a graduate of The Ohio State University. He is active in the Association of Fundraising Professionals Indiana Chapter, where he served two terms as the Vice President of Programs (1999, 2000) and as the chapter President in 2001. |
| Gil White, MD (Fox Point, WI) |
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Dr. White is a hematology-oncology physician. For 30 years, he was at the University of North Carolina School of Medicine where he was an Associate Director and, for almost a decade, Director of the UNC Hemophilia Center. Dr. White currently directs a blood research institute in Milwaukee and has the Great Lakes Hemophilia Center as one of his responsibilities.
During his career, he has been heavily involved in patient care and clinical research relating to hemophilia, including the development of recombinant factor VIII and IX, the identification of the HIV-1 virus and the initial treatment regimens for AIDS, the development of treatment approaches to hepatitis C, and the initial gene therapy of hemophilia. Dr. White has an excellent working relationship with various industry partners and with the CDC.
Dr. White has served on a number of boards, including the Great Lakes Hemophilia Foundation, GTI (a $25 million biotech company), BloodCenter of Wisconsin ($125 million nonprofit), as well on the scientific advisory boards of a number of companies. |
| Lynn Wilmarth (Pittsford, NY) |
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Lynn Wilmarth is a proven leader with a strong track record helping organizations increase their overall business effectiveness through work process improvement and cost reduction. She is currently on the leadership team at NorthStar Network, a company whose mission is to guide community stakeholders to work collaboratively to drive down healthcare costs while improving the quality of patient care.
Before joining NorthStar Network, Lynn spent 30 years at Xerox Corporation holding many leadership positions including Vice President General Manager of Sales Operations and Vice President of Marketing.
Lynn lives in Pittsford NY, and outside of work she is involved with various community organizations and Boards, including Wilson Commencement Park and the Mary M. Gooley Hemophilia Center. She attended the University of Rochester and Rochester Institute of Technology, earning a Bachelor of Science degree in Business Administration and Marketing. |
| Craig Kessler, MASAC Chair (Bethesda, MD) |
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Dr. Kessler holds a full-time faculty position and is an attending physician at the Georgetown University Medical Center, Departments of Medicine and Pathology, Division of Hematology/Oncology in Washington, DC. Over the years, Kessler has co-authored many research papers, including those related to products to treat patients with factor VIII and factor IX deficiency, hepatitis, HIV and inhibitors. The studies have been published in such journals as Blood, Clinical Research, Haemophilia, and Lancet.
Dr. Kessler has served the National Hemophilia Foundation in many capacities. He has been on the Board of Directors, served as Executive Vice President for Medical and Scientific Affairs, acted as member and Chair of the AIDS Treatment Working Group, and served as Associate Medical Director. Currently he is the Chair of the Medical and Scientific Advisory Council (MASAC). He serves on several medical and editorial advisory boards, and is a member of bleeding disorders-related committees at the CDC and NHLBI.
Dr. Kessler received his bachelor’s degree from Duke University and his MD from Tulane University School of Medicine in New Orleans. He lives in Bethesda, MD, with his wife, Dr. Linda Kessler. He has three children. |
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