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-Advocacy

 

 

 
Advocacy
 

The National Hemophilia Foundation (NHF) has advocated for the needs and interests of people affected by hemophilia and related bleeding and clotting disorders for almost 60 years. In this role, we have educated elected officials and others in government about the unique needs of people with bleeding and clotting disorders. As a result of efforts at the federal level, millions of dollars of government funds have been devoted to improve medical care, services, education, and safety and surveillance of blood and blood products. NHF was also instrumental in securing passage of the Ricky Ray Hemophilia Relief Fund Act, which provided much-needed compensation to individuals (and their families) who acquired HIV from contaminated clotting factor products. Other efforts have raised awareness of bleeding disorders, protected individuals from discrimination and ensured full access to high-quality care. NHF’s annual Washington Days provides an opportunity for the community to come together to discuss key issues, learn about advocacy, meet with elected officials, and put a face on bleeding and clotting disorders.

Advocacy at NHF goes beyond Washington and Capitol Hill. We also work closely with chapters and associations, and other key stakeholder groups across the country to address community needs at the state and local levels. By uniting, mobilizing and leveraging our collective resources, we have made significant strides in impacting policies that affect the interests of people with bleeding and clotting disorders.

You can help us make a difference. Start RIGHT HERE by learning about critical issues facing people with bleeding and clotting disorders, join with us to raise public awareness and promote the best policies.

Advocacy Priorities
Learn about NHF’s current national and state legislative and other advocacy priorities.

Advocacy Resources
Find information on healthcare coverage in your state; explore tools and other information to help you effectively communicate our issues to legislators, government officials, payers, media and others; find links to other organizations that can help, and more.

NHF's Washington Days
Register for our annual legislative action conference and visit to Capitol Hill; learn about the issues with fact sheets, talking points and other important information.

Take Action
Take action on key federal or state issues affecting people with bleeding and clotting disorders; look up and contact your elected representatives and tell them about what’s important to and your family.

Tell Your Story
Your personal story and the stories of others in this community are the most powerful advocacy tools at our disposal! Share your stories to help us tell legislators, the media and others about the everyday struggles people with bleeding and clotting disorders face in accessing high-quality healthcare and adequate reimbursement.

Healthcare Reform
The debate on comprehensive health reform is dominating activity in Washington this year and NHF is actively advocating on behalf of the bleeding disorders community.   Learn about the Congressional health reform proposals and NHF's work to ensure that health reform benefits the bleeding disorders community.

 

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