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 National Prevention Program
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About NYLI


Program Goal

The goal of the National Youth Leadership Institute at the National Hemophilia Foundation is to provide youth in bleeding disorders community with leadership opportunities to effect change and positively influence others.

Program Overview

The National Hemophilia Foundation has designed the National Youth Leadership Institute to assist young people from the bleeding disorders community to become well trained, recognized leaders.  NHF works closely with young adults through training and support; NYLI members provide educational presentations and programs to the bleeding disorders community.  NYLI provides an amazing opportunity for youth to learn and share experiences of living with a bleeding disorder.

Applications are released each May.  Youth may remain in the program for three years total, but are requested to renew their membership annually. 

Program Objectives


1.     Increase Leadership Opportunities for NYLI Members


2.     Increase Education for the Bleeding Disorders Community


3.     Increase Visibility and Reach of NHF Messaging


NYLI members will meet these objectives through trainings, educational programming and internships. Below is a list of the activities members will be expect to take part in. Each year will include Annual Meeting and Spring Leadership trainings, but responsibilities within each year will differ slightly allowing for growth and unique opportunities.

For more information or questions, please contact Christie VanHorne at 212.328.3738 or