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-Advocacy

 

 

 
Related Links
 

Hemophilia Federation of America (HFA)
HFA is a national, nonprofit advocacy organization established for people with bleeding disorders and their families. Among their activities, HFA sponsors educational and fundraising programs, monitors actions of the government and industry, and promotes awareness of the bleeding disorders community.

The Coalition for Hemophilia B
Founded by parents of a child with hemophilia B, the organization focuses on research, advocacy, and product development.

The Committee of Ten Thousand (COTT)
COTT is a grass-roots, peer-led, education, advocacy and support organization for people with HIV disease. Most of its constituents are people with hemophilia who contracted HIV/AIDS from contaminated blood products.

The National Alliance for Thrombosis and Thrombophilia (NATT)
NATT is a nationwide, community-based, volunteer health organization working to address the array of major health problems caused by blood clots.

National Organization for Rare Disorders (NORD)
NORD is a national, nonprofit health agency dedicated to the identification, treatment and cure of rare disorders through education, advocacy, research and service. For information specifically related hemophilia, click on the "Index of Rare Diseases."

World Federation of Hemophilia (WFH)
The WFH is an international organization dedicated to improving the lives and maintaining the care of people with hemophilia and related bleeding disorders around the world.

Centers for Disease Control and Prevention (CDC), Division of Blood Disorders
The CDC Division of Blood Disorders works to prevent and reduce complications experienced by people with certain hereditary blood disorders including hemophilia, von Willebrand disease and thrombophilia.

LA Kelley Communications
LA Kelley Communications create and provide educational tools to help patients with hemophilia, their families and the organizations that serve them.

MedicAlert®
MedicAlert® enables patients to manage their personal health records and have it available anytime.

Shemophilia
Shemophilia is a Web site that provides information to women and others who are living with a bleeding disorder.

Foundation for Health Coverage Education (FHCE)
The FHCE is a nonprofit organization dedicated to decreasing the number of uninsured Americans. It sponsors the multilingual U.S. Uninsured Help Line, 1.800.234.1317, which is available 24 hours a day, 7 days a week. It also provides information, resources and tools on insurance programs listed by state.